Tag: #sicklecellwarriors
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SHARING YOUR JOURNEY
Tito Oye a writer who helps others realise that Sickle cell doesn’t need to define their identity, shared: “I started publicly sharing my health journey with a blog, although at the time it was an anonymous one. Not many people around me at the time even knew I had sickle cell disease. Eventually, as I…
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SCD ENLIGHTENMENT
Sharing this to enlighten you all on the misconceptions about sickle cell as well as challenging the stigma, and educating ourselves about Sickle Cell. Having knowledge on this will be a great step towards creating a more inclusive and supportive world for all warriors.
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NOTES TO HEALTH PROFESSIONALS
1. Not all sickle cell patients look the same Health professionals may often say, “You don’t look like a sickle cell patient” if the individual doesn’t fit into their preconceived notion of what a sickle cell patient looks like. Growing up, I encountered countless people including health personnels who made this remark to me. Although…
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THINGS YOU SHOULD NOT SAY TO SICKLE CELL PATIENTS
1. You are lazy Sickle cell patients are at risk of chronic and acute fatigue. Reasons for this may include pain crises reducing one’s ability to get adequate sleep. Also, mutated red blood cells cannot carry sufficient amounts of oxygen around the body, known as hypoxemia. This can cause tiredness. As a result of this,…
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WORLD SICKLE CELL DAY
World Sickle Cell Day is an international awareness day commemorated every year on 19 June, to alert the global public about sickle cell disease. Various global and local organisations come together during this day to promote awareness campaigns and activities which recognise the necessity of the early diagnosis of sickle cell disease, its treatment, and…