Tag: #sicklecelldisorder
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RAISING AWARENESS ABOUT THE GLOBAL IMPACT OF SICKLE CELL DISEASE
1. Global Prevalence Sickle cell disease is a global health concern, with millions of individuals affected across the world. It is not limited to any specific geographic region and can be found in many countries. 2. Challenges in Low-Resource Settings Access to healthcare, including diagnosis and treatment, can be challenging in low-resource settings where SCD…
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TREATMENT OPTIONS AND THERAPIES FOR SICKLE CELL DISEASE
1. Pain Management A. Pain Medications: Over-the-counter pain relievers and prescription medications are often used to manage pain during sickle cell crises. B. Hydroxyurea: This medication can increase fetal hemoglobin (HbF) levels, reducing the frequency and severity of pain crises in some individuals. C. Opioid Medications: In severe cases, opioids may be prescribed for acute…
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STIGMATISATION OF SCD
People sometimes develop an unfair perception of people who have Sickle Cell Disease (SCD), which can lead to bias and stigma. And though there are tips an individual with SCD can follow to minimize stigma, healthcare providers, families, communities and the public at large may also play a role in neutralizing stigma. Getting educated, having…
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10 THINGS YOU SHOULD KNOW ABOUT SICKLE CELL DISEASE
Dr. Susan, a pediatric expert, explains some important things to know about Sickle Cell Disease:
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A MESSAGE TO SICKLE CELL WARRIORS
Whether you personally live with sickle-cell disease or you’re a caregiver to someone who does, there’s no doubt that it takes a lot of perseverance for you to push through the tough times. Every day is a constant struggle dealing with pain, fatigue, family drama, work responsibilities and just activities of daily living. Sickle cell…
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SCD ENLIGHTENMENT
Sharing this to enlighten you all on the misconceptions about sickle cell as well as challenging the stigma, and educating ourselves about Sickle Cell. Having knowledge on this will be a great step towards creating a more inclusive and supportive world for all warriors.
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GENOTYPE COMPATIBILITY
Genotype compatibility is an important topic that should be discussed as a matter of necessity, between partners who intend to get married and/or bear children. This helps prevent future problems for partners and their child(ren). WHAT IS GENOTYPE? Genotype is simply the genetic makeup of an individual organism which determines a specific characteristic. Blood genotype…
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HOW TO HELP A LOVED ONE
If your loved one has SCD, you want to help the person to enjoy a normal life. Here are ways you can render help: 1. Detecting signs of crisis: Being able to tell when your loved one is about to have a crisis. Knowing the signs can help you deal with crisis quickly or perhaps…
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NOTES TO HEALTH PROFESSIONALS
1. Not all sickle cell patients look the same Health professionals may often say, “You don’t look like a sickle cell patient” if the individual doesn’t fit into their preconceived notion of what a sickle cell patient looks like. Growing up, I encountered countless people including health personnels who made this remark to me. Although…
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WHEN TO SEEK MEDICAL ADVICE AS AN SCD PATIENT
Make sure you know when to get medical advice and where to go, as sickle cell disease can cause a number of serious problems that can appear suddenly. Problems to look out for include: 1. A high temperature over 38C (or any increased temperature in a child). 2. Severe pain that is not responding to…
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