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SHARING YOUR JOURNEY
Tito Oye a writer who helps others realise that Sickle cell doesn’t need to define their identity, shared: “I started publicly sharing my health journey with a blog, although at the time it was an anonymous one. Not many people around me at the time even knew I had sickle cell disease. Eventually, as I…
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10 THINGS YOU SHOULD KNOW ABOUT SICKLE CELL DISEASE
Dr. Susan, a pediatric expert, explains some important things to know about Sickle Cell Disease:
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A MESSAGE TO SICKLE CELL WARRIORS
Whether you personally live with sickle-cell disease or you’re a caregiver to someone who does, there’s no doubt that it takes a lot of perseverance for you to push through the tough times. Every day is a constant struggle dealing with pain, fatigue, family drama, work responsibilities and just activities of daily living. Sickle cell…
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SCD ENLIGHTENMENT
Sharing this to enlighten you all on the misconceptions about sickle cell as well as challenging the stigma, and educating ourselves about Sickle Cell. Having knowledge on this will be a great step towards creating a more inclusive and supportive world for all warriors.
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GENOTYPE COMPATIBILITY
Genotype compatibility is an important topic that should be discussed as a matter of necessity, between partners who intend to get married and/or bear children. This helps prevent future problems for partners and their child(ren). WHAT IS GENOTYPE? Genotype is simply the genetic makeup of an individual organism which determines a specific characteristic. Blood genotype…
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HOW TO HELP A LOVED ONE
If your loved one has SCD, you want to help the person to enjoy a normal life. Here are ways you can render help: 1. Detecting signs of crisis: Being able to tell when your loved one is about to have a crisis. Knowing the signs can help you deal with crisis quickly or perhaps…
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NOTES TO HEALTH PROFESSIONALS
1. Not all sickle cell patients look the same Health professionals may often say, “You don’t look like a sickle cell patient” if the individual doesn’t fit into their preconceived notion of what a sickle cell patient looks like. Growing up, I encountered countless people including health personnels who made this remark to me. Although…
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WHEN TO SEEK MEDICAL ADVICE AS AN SCD PATIENT
Make sure you know when to get medical advice and where to go, as sickle cell disease can cause a number of serious problems that can appear suddenly. Problems to look out for include: 1. A high temperature over 38C (or any increased temperature in a child). 2. Severe pain that is not responding to…
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THINGS YOU SHOULD NOT SAY TO SICKLE CELL PATIENTS
1. You are lazy Sickle cell patients are at risk of chronic and acute fatigue. Reasons for this may include pain crises reducing one’s ability to get adequate sleep. Also, mutated red blood cells cannot carry sufficient amounts of oxygen around the body, known as hypoxemia. This can cause tiredness. As a result of this,…
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SEPTEMBER IS SICKLE CELL AWARENESS MONTH
Warrior’s EncouragementStay strong, Sickle Cell Warriors! Your resilience and courage inspire us all during Sickle Cell Awareness Month and every day. You’ve got this! 💪❤️ #SickleCellAwarenessMonth
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